Understanding Disparities in Access to Genomic Medicine Proceedings of a Workshop (2018) / Chapter Skim
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Appendix B: Workshop Agenda
Appendix B: Workshop Agenda
Pages 79-84
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Appendix B Workshop Agenda Understanding Disparities in Access to Genomic Medicine: A Workshop June 27, 2018 Keck Building of the National Academies 500 Fifth Street, NW Room 100 Washington, DC 20001 8:30 a.m. Opening Remarks Geoffrey Ginsburg, Roundtable Co-Chair Director, Duke Center for Applied Genomics & Precision Medicine Professor, Medicine, Pathology, and Biomedical Engineering Duke University Medical Center Michelle Penny, Roundtable Co-Chair Director and Head of Computational Biology and Genomics Biogen 79
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Opening Keynote Lecture Otis Brawley Chief Medical and Scientific Officer American Cancer Society 9:10 a.m. Clarifying Questions from Workshop Participants SESSION I: VOICES OF THE COMMUNITY -- EXPLORING THE BARRIERS TO ACCESSING GENOMIC/GENETIC SERVICES Session Objective: • To learn about ongoing challenges from those individuals who are having trouble accessing genetic/genomic services.
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Panel Discussion with Speakers and Workshop Participants Discussant: Natasha Bonhomme Chief Strategy Officer Genetic Alliance 10:50 a.m. Break SESSION II: THE ROLE OF HEALTH SYSTEMS IN DELIVERING EQUITABLE ACCESS Session Objective: • Explore the perspectives of health care delivery systems as they relate to delivering fair and equitable access to genetic and genomic services.
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Sean Tunis Founder and Chief Executive Officer Center for Medical Technology Policy 1:35 p.m. Brian Ahmedani Director of Psychiatry Research Research Scientist, Center for Health Policy & Health Services Research Henry Ford Health System 1:50 p.m.
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Todd Skaar Associate Professor of Medicine Indiana University School of Medicine 4:05 p.m. Panel Discussion with Speakers and Workshop Participants SESSION V: IDENTIFYING UNMET NEEDS TO ALLEVIATE HEALTH CARE DISPARITIES IN GENOMIC MEDICINE Session Objectives: • Identify potential solutions to overcoming barriers in access to genomic medicine and actionable next steps that can be taken in the near term (1–3 years)
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Final Panel Discussion Katherine Anderson Otis Brawley Sue Friedman Jacquelyn Taylor Reed Tuckson 5:20 p.m. Final Remarks from Workshop Co-Chairs Vence Bonham, Workshop Co-Chair Senior Advisor to the Director on Genomics and Health Disparities National Human Genome Research Institute National Institutes of Health Cathy Wicklund, Workshop Co-Chair Director, Graduate Program in Genetic Counseling Past President, National Society of Genetic Counselors Feinberg School of Medicine, Center for Genetic Medicine Northwestern University 5:30 p.m.
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