Understanding Disparities in Access to Genomic Medicine Proceedings of a Workshop (2018) / Chapter Skim
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Appendix A: Summary of the Pre-Workshop Twitter Chat
Appendix A: Summary of the Pre-Workshop Twitter Chat
Pages 75-78
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From page 75... ...
that certified genetic counselors exist, and (3) that insurance often covers these services, by phone or in person • Health care providers are uncomfortable interpreting and ordering genetic tests • Differing state laws regarding genetic discrimination • Fear of genetic discrimination and a lack of understanding about genetics and screening options • The lack of a connection between genetic counselors and primary care physicians 75
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in training for genetic counselors and geneticists • Use patient navigators • Provide family screening and cascade testing in clinics • Increased inclusion of underserved and minority communities in genomics research Question #3: How can health systems and providers, including those who work at community clinics, take steps to provide better access to #genetic services? #GenomicsDisparities • Take a population health view of genetic services • Increase prevention and early intervention of hereditary conditions • Forge partnerships between larger health centers and community practices to fill gaps in expertise • Increase education in medical school about genetics, and provide continuing education for clinicians • Do not make assumptions about what a patient would want in regards to genetic services, especially if they are based on age, eco nomic status, or ethnicity • Improve health literacy concerning genetic services • Encourage hospital systems to hire genetic counselors • Increase communication between clinicians and with patients to foster better relationships and trust • Develop patient-center education resources, in multiple languages, that cover topics such as insurance coverage and the role of pre ventative, diagnostic, and treatment care • Make use of community health workers • Increase research in implementation science • Use targeted screening protocols to best identify those who need genetic testing
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From page 77... ...
• Use CDC strategies to overcome health disparities as a model for genomics (https://www.cdc.gov/minorityhealth/strategies2016/ index.html) • Look toward technology innovation as a model, and see how it meets consumer needs and provides them in an affordable, scalable way • Engage with patient and community organizations to disseminate health care messages • Use the model of improving access to dental care to underserved populations, as shown by a 2011 Institute of Medicine and National Research Council consensus study (https://www.nap.edu/ catalog/13116)
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